Beyond 6 Seconds

Coming of age with Crouzon syndrome – with Ariel Henley

As a child, Ariel Henley's face was compared to a Picasso painting. This horrifying comment didn’t come from a schoolyard bully. It was written in a magazine article about Ariel and her experience growing up with Crouzon syndrome, a congenital condition that affects the shape of her face. From that day forward, Ariel was determined to tell her story. She…